Seja Bem Vindo ao Universo do Fibromiálgico
A educação sobre a Fibromialgia é parte integrante do tratamento multidisciplinar ao paciente. Mas deve se estender aos familiares e amigos.
A Fibromialgia é uma síndrome, é real e uma incógnita para a medicina.
Pelo complexo fato de ser uma síndrome, que engloba uma série de sintomas e outras doenças - comorbidades - dificulta e muito os estudos e o próprio avanço das pesquisas.
Porém, cientistas do mundo inteiro se dedicam ao seu estudo, para melhorar a qualidade de vida daqueles por ela atingidos.
Existem diversos níveis de comprometimento dentro da própria doença. Alguns pacientes são mais refratários que outros, ou seja, seu organismo não reage da mesma forma que a maioria aos tratamentos convencionais.
Sim, atualmente compreendem que a síndrome é "na cabeça", e não "da cabeça". Esta conclusão foi detalhada em exames de imagens, Ressonância Magnética Funcional, que é capaz de mostrar as zonas ativadas do cérebro do paciente fibromiálgico quando estimulado à dor. É muito maior o campo ativado, em comparação ao mesmo estímulo dado a um paciente que não é fibromiálgico. Seu campo é muito menor.
Assim, o estímulo dispara zonas muito maiores no cérebro, é capaz de gerar sensações ainda mais potencialmente dolorosas, entre outros sintomas (vide imagem no alto da página).
Por que isso acontece? Como isso acontece? Como definir a causa? Como interromper este efeito? Como lidar com estes estranhos sintomas? Por que na tenra infância ou adolescência isso pode acontecer? Por que a grande maioria dos fibromiálgicos são mulheres? Por que só uma minoria de homens desenvolvem a síndrome?
Estas e tantas outras questões ainda não possuem respostas. Os tratamentos atuais englobam antidepressivos, potentes analgésicos, fisioterapia, psicoterapia, psiquiatria, e essencialmente (exceto com proibição por ordem médica) a Atividade Física.
Esta é a parte que têm menor adesão pelos pacientes.
É dolorosa no início, é desconfortante, é preciso muito empenho, é preciso acreditar que a fase aguda da dor vai passar, trazendo alívio. Todo paciente precisa de orientação médica e/ou do profissional, que no caso é o Educador Físico. Eles poderão determinar tempo de atividade diária, o que melhor se adequa a sua condição, corrige erros comuns durante a atividade, e não deixar que o paciente force além de seu próprio limite... Tudo é comandado de forma progressiva. Mas é preciso empenho, determinação e adesão.
segunda-feira, 21 de outubro de 2019
sábado, 23 de janeiro de 2016
Todas contém informações importantes, de interesse do paciente e seus familiares para melhor compreensão sobre a doença.
Uma excelente ferramenta para ajudar a explicar a FIBROMIALGIA, por exemplo.
Como é editada pela SBR já vem dotada de alta credibilidade.
No site você precisa seguir os seguintes passos para encontrar e baixar a Cartilha desejada.
Pronto! Ao clicar em "Saiba mais" você será direcionado a outra página do site.
É nela que você encontrará as Cartilhas para diversas doenças reumáticas.
A Fibromialgia é uma delas.
Vá rolando a página e encontrará... como na imagem abaixo
Onde você vê escrito "Dowload", click aí caso queira baixar para seu computador a Cartilha.
Depois você poderá imprimir e distribuir aos amigos e familiares.
Boa e irrefutável ferramenta para mostrar que a FIBROMIALGIA existe, é real, e tem tratamento.
Faça desta cartilha sua ferramenta de divulgação sobre a nossa síndrome.
Todos precisam saber mais e da forma correta o que é a FIBROMIALGIA!
A Fibromialgia pode ser invisível, mas os fibromiálgicos não!
(Abrafibro - Assoc. Bras. dos Fibromiálgicos)
sábado, 21 de julho de 2012
Fibromyalgia is a common health problem that causes widespread pain and tenderness (sensitive to touch). The pain and tenderness tend to come and go, and move about the body. Most often, people with this chronic (long-term) illness are fatigued (very tired) and have sleep problems. It can be hard to diagnose fibromyalgia.
· Fibromyalgia affects two to four percent of people, mostly women.
· Doctors diagnose fibromyalgia based on all the patient's relevant symptoms (what you feel), no longer just on the number of tender points.
· There is no test to detect this disease, but you may need lab tests or X-rays to rule out other health problems.
· Though there is no cure, medications can relieve symptoms.
· Patients also may feel better with proper self-care, such as exercise and getting enough sleep.
WHAT IS FIBROMYALGIA?
Fibromyalgia is a chronic health problem that causes pain all over the body and other symptoms. Other symptoms that patients most often have are:
· Tenderness to touch or pressure affecting joints and muscles
· Sleep problems (waking up unrefreshed)
· Problems with memory or thinking clearly
Some patients also may have:
· Depression or anxiety
· Migraine or tension headaches
· Digestive problems: irritable bowel syndrome (commonly called IBS) or gastroesophageal reflux disease (often referred to as GERD)
· Irritable or overactive bladder
· Pelvic pain
· Temporomandibular disorder—often called TMJ (a set of symptoms including face or jaw pain, jaw clicking and ringing in the ears)
Symptoms of fibromyalgia and its related problems can vary in intensity, and will wax and wane over time. Stress often worsens the symptoms.
WHAT CAUSES FIBROMYALGIA?
The causes of fibromyalgia are unclear. They may be different in different people. Fibromyalgia may run in families. There likely are certain genes that can make people more prone to getting fibromyalgia and the other health problems that can occur with it. Genes alone, though, do not cause fibromyalgia.
There is most often some triggering factor that sets off fibromyalgia. It may be spine problems, arthritis, injury, or other type of physical stress. Emotional stress also may trigger this illness. The result is a change in the way the body "talks" with the spinal cord and brain. Levels of brain chemicals and proteins may change. For the person with fibromyalgia, it is as though the "volume control" is turned up too high in the brain's pain processing centers.
WHO GETS FIBROMYALGIA?
Fibromyalgia is most common in women, though it can occur in men. It most often starts in middle adulthood, but can occur in the teen years and in old age. Younger children can also develop widespread body pain and fatigue.
HOW IS FIBROMYALGIA DIAGNOSED?
A doctor will suspect fibromyalgia based on your symptoms. Doctors used to require that you have tenderness to pressure or tender points at a specific number of certain spots before saying you have fibromyalgia. This is no longer the case. Your doctor may still look for tender points, but they are not required to make the diagnosis (see the Box). A physical exam can be helpful to detect tenderness and to exclude other causes of muscle pain.
There are no diagnostic tests (such as X-rays or blood tests) for this problem. Yet, you may need tests to rule out another health problem that can be confused with fibromyalgia.
Because widespread pain is the main feature of fibromyalgia, health care providers will ask you to describe your pain. This may help tell the difference between fibromyalgia and other diseases with similar symptoms. For instance, hypothyroidism (underactive thyroid gland) and sometimes mimic fibromyalgia. Yet, certain blood tests can tell if you have either of these problems. Sometimes, fibromyalgia is confused with or . But, again, there is a difference in the symptoms, physical findings and blood tests that will help your health care provider detect these health problems. Unlike fibromyalgia, these rheumatic diseases cause inflammation in the joints and tissues.
Criteria Needed for a Fibromyalgia Diagnosis
1. Pain and symptoms over the past week, based on the total of:
· Waking unrefreshed
· Cognitive (memory or thought) problems
Plus number of other general physical symptoms
2. Symptoms lasting at least three months at a similar level
3. No other health problem that would explain the pain and other symptoms
Source: American College of Rheumatology, 2010
HOW IS FIBROMYALGIA TREATED?
There is no cure for fibromyalgia. However, symptoms can be treated with both medication and non-drug treatments.
The U.S. Food and Drug Administration has approved three drugs for the treatment of fibromyalgia. They include two drugs that change some of the brain chemicals (serotonin and norepinephrine) that help control pain levels: duloxetine (Cymbalta) and milnacipran (Savella). Older drugs that affect these same brain chemicals also may be used to treat fibromyalgia. These include amitriptyline (Elavil), cyclobenzaprine (Flexeril) or venlafaxine (Effexor). Side effects vary by the drug. Ask your doctor about the risks and benefits of your medicine.
The other drug approved for fibromyalgia is pregabalin (Lyrica). Pregabalin and another drug, gabapentin (Neurontin), work by blocking the overactivity of nerve cells involved in pain transmission. These medicines may cause dizziness, sleepiness, swelling and weight gain.
Though not recommended as the first treatment, tramadol (Ultram) may be used to treat fibromyalgia pain. This painkiller is an opioid narcotic. Doctors do not suggest using other opioids for treating fibromyalgia. This is not because of fears of dependence. Rather, evidence suggests these drugs are not of great benefit to most people with fibromyalgia. In fact, they may cause greater pain sensitivity or make pain persist.
In some cases, fibromyalgia pain can improve with use of over-the-counter medicines such as acetaminophen (Tylenol) or nonsteroidal anti-inflammatory drugs (commonly called ) like ibuprofen (Advil, Motrin) or naproxen (Aleve, Anaprox). Yet, these drugs likely treat the pain triggers, rather than the fibromyalgia pain itself. Thus, they are most useful in people who have other causes for pain such as arthritis.
For sleep problems, some of the medicines that treat pain also improve sleep. These include cyclobenzaprine (Flexeril), amitriptyline (Elavil), gabapentin (Neurontin) or pregabalin (Lyrica).
People with fibromyalgia should use non-drug treatments as well as any medicines their doctors suggest. Research shows that gentle body-based therapies including Tai Chi and yoga can ease fibromyalgia symptoms.
Cognitive behavioral therapy (a type of therapy focused on behavior change and positive thinking) can help redefine your illness beliefs. Also, through learning symptom reduction skills, you can change your behavioral response to pain.
Other complementary and alternative therapies (sometimes called CAM or integrative medicine), such as acupuncture and massage therapy, can be useful to manage fibromyalgia symptoms. Many of these treatments, though, have not been well tested in patients with fibromyalgia.
LIVING WITH FIBROMYALGIA
Even with the many treatment options, patient self-care is vital to improving symptoms and daily function. In concert with medical treatment, healthy lifestyle behaviors can reduce pain, increase sleep quality, lessen fatigue and help you cope better with fibromyalgia.
Here are some self-care tips.
· Make time to relax each day. Deep-breathing exercises and meditation will help reduce the stress that can bring on symptoms.
· Set a regular sleep pattern. Go to bed and wake up at the same time each day. Getting enough sleep lets your body repair itself, physically and mentally. Also, avoid daytime napping and limit caffeine intake, which can disrupt sleep. Nicotine is a stimulant, so those with sleep problems should stop smoking.
· Exercise often. This is a very important part of fibromyalgia treatment. While difficult at first, regular exercise often reduces pain symptoms and fatigue. Patients should follow the saying, "Start low, go slow." Slowly add daily fitness into your routine. For instance, take the stairs instead of the elevator, or park further away from the store. After awhile, do more physical activity. Add in some walking, swimming, water aerobics and/or stretching exercises. It takes time to create a comfortable routine. Just get moving, stay active and don't give up!
· Educate yourself. Nationally recognized organizations like the Arthritis Foundation and the National Fibromyalgia Association are great resources for information. Share this information with family, friends and co-workers.
POINTS TO REMEMBER
· Look forward, not backward. Focus on what you need to do to get better, not what caused your illness.
· As your symptoms decrease with drug treatments, start increasing your activity. Begin to do things that you stopped doing because of your pain and other symptoms.
· With proper treatment and self-care, you can get better and live a normal life.
THE ROLE OF THE RHEUMATOLOGIST
Fibromyalgia is not a form of arthritis (joint disease). It does not cause inflammation or damage to joints, muscles or other tissues. However, because fibromyalgia can cause chronic pain and fatigue similar to arthritis, some people may think of it as a rheumatic condition. As a result, often a rheumatologist detects this disease (and rules out other rheumatic diseases). Your primary care physician can provide all the other care and treatment of fibromyalgia that you need.
TO FIND A RHEUMATOLOGIST
FOR MORE INFORMATION
The American College of Rheumatology has compiled this list to give you a starting point for your own additional research. The ACR does not endorse or maintain these Web sites, and is not responsible for any information or claims provided on them. It is always best to talk with your rheumatologist for more information and before making any decisions about your care.
American College of Rheumatology Research and Education Foundation
Learn how the ACR Research and Education Foundation advances research and training to improve the health of people with rheumatic diseases.
Written by Leslie J. Crofford, MD, and reviewed by the American College of Rheumatology Communications and Marketing Committee.
© 2012 American College of Rheumatology
Versão em Português